Happy Blogiversary To Me

I completely missed my blog’s anniversary yesterday. Whoops. Yesterday marked six years since I decided LiveJournal was so 2004 and abandoned it in favor of my own independent blog.

What do I get myself for a blog anniversary? Wikipedia says the sixth anniversary gifts are iron, sugar or wood, depending on which chart you use. I’m holding out for my seventh anniversary: wool. In November, a nice wool sweater or socks would be lovely.

Instead, this year I gave myself a little bit of nostalgia. I read back through some of my old blog posts and laughed at how much I forgot. Thank goodness I wrote it all down – there are so many incredible stories of my daughters that I never would have remembered without my little corner of the Internet.

Oh, how I miss those curls on Cordy…

Six years ago I had one cranky toddler, worked part-time at a university, and weighed about 50 pounds more than I do now. In some ways I was happier – I had more free time, mostly – but in other ways I see how much we were struggling with the adjustment to being parents and the financial strains we were under.

So much was different then. Mira wasn’t even a thought yet. Autism was just something I connected with the movie Rain Man. I had yet to start nursing school. Aaron still had long hair. And I still felt like a rookie mom, both overconfident and unsure of everything, all at the same time.

As I read through my archives, I see how much motherhood has changed me in six years. I’m fighting harder than ever for a better life for my kids. Tolerance for others, the environment, healthier foods, equality, health care, civil rights…it all matters more to me now. Being a special needs mom has also changed my outlook on so many things: that grumpy, strong-willed toddler from the start of this blog is now a charming, beautiful, autistic girl who depends on me to fight for her to get the services she needs to help her cope with this world, as well as understanding from others who may first try to dismiss her due to her autism.

But on this Thanksgiving eve, I’m especially thankful that I started this blog. Coping with all of the changes we’ve gone through would not have been as easy without this space to write it all out, and the friends I’ve made through this blog who have been my support when I felt like giving up on everything. The community of moms I’ve met through blogging has been fantastic – along with my close “real-life” friends, many of my blog friends and commenters have been my shoulders to lean on, my place to turn for advice, and (I hope) I’ve been able to be the same for them as well.

If you have some time, browse the archives. There are some fantastic and funny posts hidden in there. And some adorable photos of Cordy and Mira, too.

So for all of you still reading, thank you. I’m thankful for having this space to share my life with all of you, and for the friendship and community you’ve shared with me.



Fun in the Sun

Cordy and Mira demonstrate proper head and eye protection in the sun.  Too bad Cordy already scorched her shoulders in a sunscreen mishap earlier last week.

sunglasses

(Yes, this is totally a shameless photo filler post. But hey, look at the cute kids!)

(No, really, my review of the Ford Fusion is coming soon. Although I nearly typed Ford Fission when I wrote that, which would be an ENTIRELY DIFFERENT kind of car, wouldn’t it?)

(And did I mention the cute kids on this little mommyblog?)



Do Not Be Alarmed

If you’re one of those people who has a sharp eye for detail, you might notice that this little blog has slimmed down slightly, at least where the address is concerned. I decided that after 5 years, it was time to drop the unsightly blogspot from the middle and just be http://www.amommystory.com/.

It fit better on my business cards for BlogHer, too.

Hopefully this transition is seamless, but if there are any hiccups, please let me know. I’m told that any links to old posts or feeds will still automatically redirect to their proper places. I’ll admit I have no idea how it works – I’m impressed that I managed to redirect the domain at all without calling for help.

And hey, maybe this transition to a slightly more professional-looking domain name will result in a slightly more professional blog?

Nah.



Madeline Spohr

Today is one of those days I don’t even want to venture outside into the sunshine and face other people. Because how can you explain to them that your eyes are red and you’re fighting back tears because an “online friend who you’ve never met” (yet) has lost her young child?

For those who don’t read The Spohrs are Multiplying, little Maddie passed away unexpectedly last night after being admitted to the hospital for respiratory problems. I know how sick and heartbroken I feel about it, so I can’t imagine the pain that Heather and her husband are going through right now.


Maddie was a preemie who endured several ups and downs throughout her 17 months, yet nearly every photo of her showed a bright, smiling child so incredibly full of life and happy with what she had. It is impossible to look at a photo of Maddie and not smile at her beautiful grin and the mischevous twinkle in her eye. Mira – only a few months older than Maddie – has often pointed and smiled at Maddie’s photos, one of only a few online children that Mira takes an interest in during my blog reading.

It doesn’t matter that Heather is an online friend. Whether we know her in person or only through her writing, her pain is still shared by so many of us, and her loss affects us all. She made so much of her life with Maddie available to us that it’s hard to not feel like they’re next door neighbors.

Hug your children a little tighter today as you remember Maddie and keep her family in your thoughts. The family has asked that any help be in the form of donations to March of Dimes and I’m hoping we can push her walk donations over the $10K mark.

As I mentioned last week, I’ll be walking in the Columbus March of Dimes walk at the end of this month. I’m sad that I have a new reason for my walk, and I’ve added myself to Maddie’s team to help raise more money in her name.

You’ll be missed, Maddie. All my love and strength to your family as they endure this difficult time.



Not Everyone Has An Easy Start

I have to admit that both of my girls had a fairly easy time with birth. Cordy was a scheduled c-section during the 38th week because she was determined to never come out and had arranged herself in such a way to guarantee that. She was unaware that doctors could forcibly remove her by surgery. I still remember how pissed off she was at being dragged out into the cold air, and I’m not sure she’s ever completely forgiven us for that.

Mira was an extremely uncomplicated birth, other than the fact that she waited a full week past the due date to make her appearance.

I’m lucky that both of my girls were born healthy, requiring no assistance in breathing or feeding. Some aren’t so lucky, though, and have to fight much harder for their place in this world.

If you haven’t met Mama Spohr (Heather) yet, you should really take the time to go read her blog. She has a beautiful little girl named Maddie who had a very rough start to life. Maddie was born at 28 weeks after Heather had been on bedrest for 19 weeks because of pregnancy complications.

Heather had PPROM, which is an acronym for Preterm Premature Rupture of Membranes, which is medical-speak for premature baby coming now – NOT GOOD. Maddie was rushed to the NICU when she was born, where the medical team fought to keep her alive. At times her lungs would rupture with tiny holes, forcing air into her chest cavity. The slightest touch could overstimulate her and send her heart rate plummeting downward. (Note: I’ve seen this happen in the NICU – it’s amazing how strong yet delicate preemies are!)

More than once Heather was told her daughter would not survive. But thanks to a well-trained team, a state-of-the-art NICU, and of course Maddie’s strong-willed spirit, she’s here today.

One reason I agreed to be a March of Dimes Mom is that I stand firmly behind the research and advances they have helped make happen. There was a time when nothing could be done to save a baby when the mom suffered a PPROM, and preemies under 32 weeks had a small chance at survival. Now NICU doctors and nurses are saving babies born at 23 weeks gestation. As the technology improves, outcomes will improve also, and hopefully fewer babies will be born too soon.

Heather is participating in the March of Dimes March for Babies on April 25 in Los Angeles. She’s already done an amazing amount of fundraising, and at this very moment is only $140 away from her $2000 goal. To help get more donations, she’s giving away an all-in-one printer and Kodak digital camera – every dollar donated counts as one entry. Her contest ends tonight, but you can still donate beyond today, too.

I want to see her surpass her goal. This money goes directly to help fund research so children like Maddie get that help they need to survive. And even if you don’t have the money to spare, check out her blog and cheer her on, OK?

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