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Jun 16, 2009

Unwanted on 1st Day of Camp – A New Record!

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I was hoping for a first day of summer camp that would end with reports of “she did great!” and in some ways it did. But that statement was also followed with “until…”

Cordy’s camp ends at 1:30pm each day, and we arranged it so she stays in after-camp until 3:30 three days a week. She’ll be in all-day Pre-K in the fall, and she needs to start getting used to a longer day. I figured this was a good place to start. This morning I met her after-camp teacher, and after warning her that Cordy would likely be having a rough day today, her response? “Oh, I’ve cared for lots of kids and I’ve seen everything! There’s no kid I can’t handle!”

Today, at 1:45pm, I got the call from Aaron’s aunt. (The preschool director.) At the end of camp, they took Cordy to the front along with the other kids who were leaving at 1:30. She got to watch them leave while she was told she had to remain behind. Today she was the only kid in after-care. Naturally, she had a big meltdown. They were calling to ask me for advice on getting her out of her meltdown. I gave a few tips and hung up, my stomach in knots as I wondered if I’d get another call soon.

Half an hour went by, and I called back to see if she had calmed down. Aaron’s aunt said Cordy and her teacher took a walk to calm her down. I decided at this point to get her early, since it was her first day. When I arrived, they sent someone to find Cordy and her teacher. As they came around the corner, Cordy had a big grin on her face and didn’t seem distressed at the moment.

I hugged Cordy and asked her how her day was. It was then her after-care teacher said, “She is very tired and worn out. Camp is hard on her.” Cordy seemed a little tired, but nothing out of the ordinary to me.

And then the gut punch: “I really think you should pick her up right after camp each day.”

*blink* *blink*

“Well, I can’t do that,” I stammered, “I’ve already paid for her after-care, and I need the time while she’s gone to get things done.”

The teacher was unimpressed. “The camp day is too hard on her. She can’t handle a full day. And she has no other kids to play with.”

I’d like to pause in this conversation to remind everyone: FIRST DAY, PEOPLE!!!

I explained to the teacher that Cordy doesn’t know the routine at the moment, and that once she gets the hang of it she’ll handle transitions better. I also told her Cordy will be in Pre-K in the fall and needs to start transitioning to a full-day program. And I had been told right before they came around the corner that another child would be in after-camp next week.

“Well, we’ll see what happens on Wednesday…” And with that ending, she left.

We’ll see? Or what, she’ll be kicked out of after-camp? Holy hell, it’s only been one day! ONE DAY. Un dia.

Surely other kids act up on the first day of a new program. A child need not be on the spectrum to have a bad day, right? You can’t judge kids by their first day in camp.

I’m completely floored by this teacher’s response to Cordy. Especially since she was the teacher who declared herself some kind of child whisperer that can handle anything. I can’t decide if my mistake was in not telling her enough about what to expect from Cordy, or telling her anything at all and somehow biasing her against Cordy. Was I wrong to mention autism? I feel like we’re being scolded for thinking we could mainstream her. She doesn’t act like a perfect robot child, and so clearly she doesn’t belong here. Send her back to the land of misfit children where she belongs.

And strangely enough, when I spoke with her camp teacher, the report was the complete opposite. Her camp teacher loved her, and said that Cordy had a really good day. She didn’t like circle time singing, preferring to stand away from the group, and she clung to her swim instructor like a barnacle in the pool, but otherwise she had a lot of fun and followed directions. Her teacher was impressed at how she coped with her new schedule.

And that whole talk about being too tired? Cordy did look a little worn out, but she wasn’t sleepy. She didn’t nap the entire day, and was a bundle of energy when we got home.

We’ll see what happens on Wednesday, but I’ll be pissed if I again hear that Cordy should not be in after-camp care. I know my daughter is pretty amazing, and I know she’ll go on to earn many honors, but having the title of “Fastest ejection from a daycare” is an honor I’d rather she not have. Because I then might have to earn the title of “Loudest mother” for shouting HAVE A LITTLE FREAKIN’ PATIENCE! at her teacher. Which is still better than “Mother drinking herself into oblivion” from the stress of it all.

Filed Under: Autism, big issues, Cordy, daily life · Tagged:


Jun 15, 2009

Do They Have A Mommy Relaxation Camp?

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‘Cause if they do, I could use one right now.

Today was Cordy’s first day of summer camp. “Typical” kid summer camp. Keep up with the pace summer camp. Do self-care stuff on your own summer camp. And I’m nervous as hell.

Two years ago, right after Mira was born, we put Cordy in a summer camp that was both a help and a disaster. I needed the time without Cordy, but she didn’t handle camp well. She didn’t follow the group. She didn’t participate in activities. She had massive meltdowns in group assembly. She had to be fed because she wouldn’t feed herself. And she wouldn’t drink from a cup, so she often was extremely thirsty at the end of the day. That was when we first heard the words, “It might be a good idea to get her evaluated.”

One year ago, after a year of special needs preschool, we enrolled her in a special needs summer camp program through the school district. That? Also a disaster. Many of the kids in that program had more severe disabilities, and Cordy spent all summer backsliding.

But today she’s being mainstreamed again. I know it is best for her. She needs the challenge. She’s made incredible progress and is ready for this, but I feel like I’m still trying to convince myself of that statement.

I worry the other kids won’t accept her. I know she’ll be hard to deal with during the first week or two – until she learns the routine – and I worry her teachers won’t wait for her to blossom into the happy child and instead write her off as worth their time early on. And what if she doesn’t know to ask to go to the bathroom? Will she have an accident?

I’m overprotective -there’s no hiding that fact. I do try to shield her from some of the ugly in life. I step in when she encounters mean kids probably sooner than I should. Oh, and I gave her teachers a speech about Cordy’s sensitivities and quirks that was so long they probably quit listening after the first few sentences and just nodded and smiled to keep me happy.

We pick her up this afternoon, and I’m hoping for a glowing report. Or at least a “it wasn’t too bad” report. Until then, I’m all nerves.

(And Mira starts summer camp tomorrow, too. Strangely enough, I’m not at all worried about her.)

And if you’re bored and like looking at photos of people in dressing rooms under bad fluorescent lighting, come check out my little fashion show and help me choose clothing for BlogHer!

Filed Under: Autism, being a mom, Cordy ·


Jun 12, 2009

Haiku Friday: Counting

By ·
A surprise talent:
Mira can count to fourteen
Where did she learn that?

Although she is hard to
understand, the numbers are
clearly there for her

My only guess is
she is watching TV more
closely than I thought

Mira has apparently known how to count for awhile, but didn’t feel the need to share it with us. But when walking down the stairs the other day, she counted each step, going all the way to 14 without prompting. We were stunned – who taught her to count? I’ve done a little bit of counting with her in the past, but nothing more than 1, 2, 3, 4, 5. And then I hear aaaaii (8), niiiii (9), ehn! (10), eeeveeen (11).

She must have had pity on her poor dumb mother, enduring my elementary lesson while already mastering the intermediate levels. I can only guess that she’s paying close attention to Sesame Street and Noggin each day.

To play along for Haiku Friday, follow these steps:

1. Write your own haiku on your blog. You can do one or many, all following a theme or just random. What’s a haiku, you ask? Click here.

2. Sign the Mister Linky below with your name and the link to your haiku post (the specific post URL, not your main blog URL). DON’T sign unless you have a haiku this week. If you need help with this, please let me know.

3. Pick up a Haiku Friday button to display on the post or in your sidebar by clicking the button at the top.

REMEMBER: Do not post your link unless you have a haiku this week! I will delete any links without haiku!

Filed Under: growing up, Haiku Fridays, Mira ·


Jun 9, 2009

Last Day of School

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Today was Cordy’s last day of preschool.

After typing that last sentence, it took me 15 minutes to continue this post. I just kept staring at that sentence and thinking about all it means.

Cordy began preschool right after she turned three years old. After traumatizing evaluations, she was determined to be “special-needs” and placed in a special needs preschool class right away. I remember first meeting her teacher and thinking she seemed very nice, but I worried that there was no way she could control my wild Amazon. Her teacher took one look at her and said, “Oh, she’ll love me. I guarantee it.”

And school did not start well. Cordy hated going. Each day I would take her to her classroom, and they would have to pull her off of me so I could leave. Her screams echoed down the hall as I left, and I tried not to cry, reminding myself this was what was best for her. At that time, she didn’t engage her classmates, she paid no attention to what was going on in the room, and she refused to let anyone touch her. Asking her to do something she was afraid of resulted in a meltdown. She was still in diapers, too.

Her first school photo was a success only after her teacher spent an hour trying to coax her into the room, and even then she looked scared to death. But ever so slowly, changes appeared. She didn’t cry and scream when I dropped her off in the morning. She had better progress reports from school (even if the physical therapist still wasn’t happy with her) and her teacher told me that she was starting to fingerpaint! Like, with real paint on her fingers! And without collapsing into a puddle of tantrum on the floor!

Near the end of the first year, Cordy came home one day with her hair in a ponytail. Aaron and I were stunned. Cordy never let anyone touch her hair, yet now she was sporting a ponytail. I didn’t see any blood under her nails, so I assumed she let her teacher play with her hair.

Summer break was difficult. Cordy missed her teacher and she didn’t like the summer school program for special needs children. Much of the progress of the school year faded away during the summer. But she was going back to her same teacher and classroom in the fall, so I had something to look forward to.

This school year has been amazing. On her first day, she was excited to go back to school, unlike her first day a year before. After a few months, she started talking about her friends at school – friends!! My heart nearly burst at the thought of her finally interacting with other kids! Her teacher reported that she was starting to go with her classmates to the bathroom now, although she still wouldn’t use the potty. That wouldn’t happen until February.

We noticed that she came home many days with ponytails. Sometimes pigtails. By spring break she occasionally came home with her hair french braided. Her school photo? While it still took some coaxing, she looked more relaxed this year.

In two years of preschool, Cordy has become a new person. She’s spun that cocoon and broken out to reveal the beautiful butterfly that she is meant to be. That confused, angry, sensitive child that started in 2007 has been taught how to deal with the crushing sensory experiences life throws at her. She’s learned that she doesn’t need to always react to new situations with fear. Other children are in her line of sight now, all possible new friends to her.

Don’t get me wrong – she still has a long way to go, too. Cordy has little ability to focus on a task for more than a minute. Even with learning to cope, the world is still scary to her and her senses are easily overwhelmed. She may see other kids now, but she has a lot of trouble trying to hold a conversation.

And like her teacher predicted in 2007, Cordy adores her. When we dropped some gifts off for her teacher today, Cordy gave her a big hug and told her, “I love you, Miss W!” Tears were shed over the end of the year, and phone numbers were exchanged so we could be in touch this summer.

Because with the end of this school year, a big change is looming ahead of us. She’s too old to return to preschool and her beloved teacher. She’s eligible for kindergarten, but Aaron and I, along with Cordy’s teacher and therapists, all agree that she’s not ready for kindergarten yet. At this point she’d be eaten alive by the other kids, and after she was bullied at the mall earlier this year, I don’t think I can endure that yet.

Instead, her teacher pulled some strings to get her placed at one of the best special needs Pre-K programs in the school district next year. It’s an all-day program, unlike her preschool class, and the teacher is one that Cordy’s current teacher highly respects and recommends. There will be a strong emphasis on academics as well as the social skills she’ll need to survive kindergarten.

But we’ll miss her teacher. Miss W is a part of Cordy’s success, and I wish we could take her with us.

Filed Under: Cordy, growing up, school ·


Jun 5, 2009

Haiku Friday: DONE!

By ·
A great day has come
My final exam is done, now
I can graduate

This journey started
here three years ago and now
you’ll see it end, too.

I should be telling you that next week I’ll be walking across the stage in an elaborate graduation ceremony, but the truth is, I’m counting today as my graduation. I did the graduation walk when I received my BA in History, so I really don’t feel the need to sit through another one of those again. There is a pinning ceremony next week that I will attend, and I’ll try to have someone remember a camera.

It was here on this little blog that I decided to switch careers and try nursing, back in 2006. Cordy was 15 months old, Mira wasn’t even a thought yet. I wasn’t sure at the time if I would actually follow-thru with my bright new idea – after all, I’ve got credits for two Master’s degrees sitting around that I only half finished.

There were several days I considered quitting. The work was overwhelming at times. After pre-requisites, I started my actual nursing classes with a three month old baby at home. More than once I had to remind myself that not only was this an interest of mine, but that I was doing this for my family, too. I had to finish this because they needed me to finish.

I really disliked several of my clinical locations, and realized quickly that I was never going to be a happy nurse in med-surg. My two favorite clinicals were our mother/infant clinical and the rotation through pediatrics at Children’s Hospital.

But with the support of my family (especially Aaron, who had to deal with me stressed out every single day sometimes) and friends who provided both online and in-person cheering sections, I made it. The last exam was completed at 2:10pm today. I have my grade for the class. I will be graduating with honors (Cum Laude). And after I take our state license exam at the end of the month, I’ll officially be a Registered Nurse.

(WOO-HOO!)

What will I do with all my free time now? (Message from my practical side: look for a job!)

To play along for Haiku Friday, follow these steps:

1. Write your own haiku on your blog. You can do one or many, all following a theme or just random. What’s a haiku, you ask? Click here.

2. Sign the Mister Linky below with your name and the link to your haiku post (the specific post URL, not your main blog URL). DON’T sign unless you have a haiku this week. If you need help with this, please let me know.

3. Pick up a Haiku Friday button to display on the post or in your sidebar by clicking the button at the top.

REMEMBER: Do not post your link unless you have a haiku this week! I will delete any links without haiku!

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Filed Under: me me me, school ·