Freeze Frame

Pull out a camera, and Mira immediately wants to cheese it up. And while it gets tedious after awhile, it’s impossible to say no to her. I mean, c’mon, how can you turn down the chance for unlimited close-ups?

Shy smile

Sweet, yet neutral look

Huh? What exactly are you going for here, Mira?

This? This is what I face for the next 16 years.


New Blog Post, Now With MORE Evaluations!

Despite knowing that more than half of the adult world are parents, it’s easy to feel alone sometimes. Especially when your kid doesn’t follow that standard growth curve, be it physically, developmentally or socially. You want to talk to other parents about your child, but at the same time, you worry no one will understand. Or worse – they won’t care and instead judge your parenting in its place.

Which is all a long-winded way of saying thank you. Whenever I need advice, encouragement, or just someone to say I hear you, I can always turn to the blogging community for support. My previous post was mostly about me trying to process the news I had been given about Cordy, and all of your comments were very, very welcome. I was feeling a little alone and uncertain about what was the best course of action for her, so crying it out in a blog post seemed like a good way to work through it. It’s a lot of responsibility to make choices that could affect her entire life, and I often worry I’m making the wrong ones.

You’ve given me fresh ways of looking at the situation, new ideas to consider with her team, and a lot more hope that no matter what decision is made, it’ll all work out. This is the heart of blogging for me – the community – and I hope this aspect of blogging never goes away. I no longer feel alone; instead I’m empowered and know that I’m doing the right thing by carefully considering the options and continuing to educate myself more on each option.

At this point, a lot of my worrying is on hold until we find out what schools she’s offered acceptance into next year. Our school district has a lottery for schools, and we can apply for up to three. We’ll have to see what schools are even available to her. Depending on the lottery, she may not even have the choice of a special-needs classroom. Or if we really want to pursue that option, we’ll have to work with school officials to bend the rules to get her where she needs to be.

Instead, I now turn my attention to the question of summer camp. Cordy attended a mainstream summer camp last year with little difficulty (OK, there were a few bumps along the way…), but this year she’s old enough to be in the older kids camp, with a more rigorous schedule. I’m not sure if it would be the best fit or if we should consider a special-needs camp. I’ll be spending the next weeks researching all our options and likely doing more hand-wringing.

And then there’s Mira.

Not content to let her sister get all the attention, she had her own school district evaluation a few weeks ago, and just last week we received the results of that evaluation. A team of experts again convened around a table with me, and one by one they gave me their report on Mira.

(Spoiler: She doesn’t have autism. Not even a chance. At all. Nope, none. Just wanted to get that out there before we begin. Our purpose of the evaluation was to see if she qualified for further speech therapy.)

First, the psychologist explained that Mira scored on the high end of average range for social/emotional skills and adaptive behaviors. She knows how to play the social game, and she has a good grasp of imaginative play and daily living skills. No surprises here.

Then gross and fine motor skills were addressed. She is at the low end of average for both of these, but not behind enough to qualify her for special needs services. Both therapists explained that most of her problems with these areas were in motor planning, and depending on the results of speech would tie in with a diagnosis of speech apraxia.

Then the speech therapist started her presentation. She began with verbal comprehension, and explained that she’s never seen a child of Mira’s age score so high. She was easily working with concepts rated for a five- year-old, and the therapist said she probably could have handled the seven-year-old material but she stopped the test before that point, fearing that Mira would tire out before the other therapists had the chance to evaluate her.

At this point I was resigned to the idea of Mira not qualifying for any additional services. I was hoping she’d be offered some speech therapy through the school district, hoping we could cut back a little on the $100 a week we’re spending on her current speech therapy. But with such good evaluations – even possibly gifted in language! – it seemed unlikely they would want to help her speech issues.

But then the therapist brought up the area of articulation, which in Mira’s case she described as “a mess.” She drops a lot of consonant sounds, substitutes sounds for other consonants, and generally is very hard to understand. In terms of placing her on their scale, she ranked well below the cut off line for average.

Put the articulation and verbal comprehension scores together and she still is average, but in this case the therapist recommended the school district still provide services. They don’t want her to become frustrated at not being understood and then stop trying. We’re lucky that she’s a persistent little thing right now, repeating herself hundreds of times if needed until you understand what she’s trying to say.

So the final verdict was she has all of the signs of speech apraxia, which can be remedied by plenty of speech therapy. I’ll admit, I probably seemed far cooler about this news than they expected. But c’mon – a little speech delay? Pssh – that’s nothing. I can handle that! Did you meet my older daughter three years ago when she scared the school nurse with her violent meltdown? (Side note: the special ed teacher in the room DID meet my shrieking child three years prior, and still clearly remembers that day. She was the one who carried Mira into the building for me that day, and she’s ecstatic to hear of Cordy’s improvements.)

Our choices at this point for Mira are special-needs preschool or just speech therapy. They’re concerned she’ll be bored with her classmates in special-needs preschool, but the benefit is they can also offer her OT and PT to help those minor problems in gross and fine motor skills. Since it’s a half-day program, they recommended placing her in a typical half-day preschool for the other half of the day.

I’m leaning towards that option, only because they also promised me her teacher would be Cordy’s first preschool teacher, Miss Wally. (*Not her real name.) I may not have written much about her, but know that I’d walk through fire for that woman. She worked miracles with Cordy, and I remember last year we both cried – teacher and parent – on Cordy’s last day with her. She told me if Mira ever needed anything, I was to make sure they sent Mira to her. And now they plan to.

So it would appear I now have two children who are considered to be “not typical.” But I don’t mind. They are both awesome little girls, as different as the sun and the moon, and I’m glad I get to be their mother.

As a former quirky, nerdy girl who didn’t fit in, and possibly still doesn’t, these two girls couldn’t be more mine. Aaron would argue that he fits that quirky description, too. Which means we’re the perfect parents for them.

They may debate that statement when they’re teenagers.


Picture Time

I realized it’s been awhile since I posted a few good photos of Cordy and Mira. Let’s be honest, they’re the stars of this blog – I’m only the storyteller and supplier of Goldfish and gummy bears.

I can’t say we’re all looking our best at this time of the year. We’re cooped up, it’s cold outside, and the dry, cold weather is brutal on skin and hair. Still, they somehow manage to look cute.

Super Mira, guardian of the sippy cups:

See that serious face? You know she’s a tough superhero!

Cordy, hiding behind a mop of messy hair after I tried to straighten it (in order to trim it):

She’s only smiling because she doesn’t realize how badly mommy mangled her hair.

Noticeably absent from photos: me. Not after the sleeve of Girl Scout cookies I just inhaled this evening.

I’m peeking out from my winter cave. Rumor has it the warm weather may return this weekend. And hopefully it’ll bring my motivation and energy with it.



I’m Not A Rookie Mom, But Fevers Still Worry Me

Give me a daughter facing the challenges of autism, and I rise to the challenge. Or give me a daughter with a speech delay, and I fearlessly jump in to start early intervention with complete confidence she’ll triumph.

But give me a kid with a hacking cough and a fever of 103.5 who looks this miserable:

…and I’m a puddle of worry.

I’m often impressed with how Cordy and Mira remain so healthy. Sure, they get colds about as often as any other kid, but they are most often minor colds and rarely slow them down. Fevers are always minor – just a little warm, no need for medication. And we’ve had plenty of stomach bugs, but other than the unpleasantness of cleaning up blow-out diapers, they weren’t too bad.

And then Mira’s cough began on Sunday. By yesterday it was a constant, fierce cough that forced her to catch her breath after a coughing fit, along with a fever. She spent last night coughing and crying in her sleep, and I was unable to do anything to make it easier for her.

This morning she slept in, something she rarely does. And then she refused breakfast, something she never does. She didn’t want to play or watch TV – she only wanted to rest her flushed little face against me. Her temp was 103.5.

So I took her to the pediatrician, where I was given few answers: It’s probably not strep. It’s most likely viral, either a throat infection or the flu. No antibiotics for now. Nothing to do at this point but give her ibuprofen round-the-clock on schedule, keep her hydrated, and wait it out.

Wait it out. Sounds so simple, and yet…

Today she didn’t fight her nap for once, and she didn’t pick fights with her sister. She spent a lot of time on me instead of playing with her trains. She’s not herself, and I don’t like that.

Many parents have kids that run fevers like this all the time, and are probably so used to it they would laugh at my hand-wringing and worry. I’ve advised several parents on how much ibuprofen to give and signs/symptoms to watch for, however it’s always different when it’s your kid. This is mostly new to me, and feeling the nape of my smallest child’s neck on fire, even with ibuprofen and Tylenol in her, leaves me feeling helpless.

I’m hoping she’ll wake up tomorrow a little less warm, a little more energetic, and a little closer to putting this behind us. If not, I’ll be right here to provide ibuprofen, refill juice cups, and provide a comfortable lap to cuddle on. I’m thankful to have a job with sick time so I can be home with her when she needs me the most. Because it’s not my nursing skills that are being used here –  it’s being her mommy that magically helps her feel better.

**********

Also, I’m proud to announce I’m one of several talented writer for the new Ohio Moms Blog! (Part of the amazing SV Moms Group.) Stop by for a visit, and be sure to check out my first post there, where I am once again performing amazing feats of hand-wringing.



2010: Now This Is More Like It

I wanted 2010 to be the year of everything awesome. And so far, it’s not too bad. In fact, today kind of feels as far from 2009 as it could possibly be.

After a year and a half of unemployment (aside from a four-month contract job), Aaron started a new job today. It’s only a three-month contract for now, but the plan is to hire him on as a full employee at the end of the contract. Basically, the contract is his trial period. His first day went well: the job is creative and challenging and his coworkers are friendly and welcoming. I’m hoping it works out and he’ll be happy with his work.

As a result of his new job, we had to juggle our childcare situation. Aaron will be working traditional office hours, and while I work nights, we still need someone to cover on the days when I’ve worked and need to sleep. Cordy’s in school full-time, but Mira had only been in preschool two half-days a week.

So today Mira went back to her school, but into a new classroom. She’s attending three full days a week now, giving me a chance to sleep more, and giving Mira what she wants – the chance to spend more time at school. (The other days will be covered by a friend and family.) At two-and-a-half, Cordy hated being outside of the house, and would have fought going to preschool each day. But Mira, our little socialite, loves school and would complain when we picked her up each day.

I worried that a full day schedule might be too much, even for Mira, but when I picked her up at 5:15pm, she responded to seeing me with, “I don’t wanna go home.” Apparently she had a fantastic day, and is thrilled to go back again tomorrow. All is well with the changes in her schedule.

OK, nothing much has changed for Cordy. Other than she will now be sent home with homework starting this week. Homework? In pre-K? School has changed a lot since I was a kid.

As for myself, I’ve got a few days off right now and I’m finding myself happy to be more involved in directly caring for my girls again. Since starting work, I’ve been on the periphery at home, with Aaron taking on the bulk of childcare while I have waffled back and forth between being a day walker and a child of the night. Adjusting my schedule back and forth is terribly hard, leaving me feeling like a shell of myself at home with my family.

But with Aaron working now, I have to step up and force myself to be more involved again – and I like it. I like being the one preparing lunch, doing the school drop-off routine, reading with Cordy, playing games with both girls, etc. I missed doing all of that. Well, maybe not all of it, but a lot of it. We’ll see how things go once I’m back to work later this week. I hope I’ll be able to find some inner strength to be everything to everyone without cracking.

Even our house got a little update today. Thanks to an awesome Black Friday deal, we got a new microwave. Our current one is on a little stand taking up way too much room, and I wanted something above-the-range so I could replace that little stand with a pantry. Today, part one of that plan was accomplished:

Before:

Um, yeah, ignore the mess around the range.

After:

Shiny! Pretty!

So yeah, let’s keep 2010 moving right along on this positive wave, OK?

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