Missing: One Blogger’s Personality. Reward If Found.

So, um…yeah.

I’ve had several posts about the kids lately, but what about me?

Hmmm…yeah, what about me?

Truth is, I’ve been stumbling through every day, thinking only as far ahead as the next time I get to sleep and generally not much further than that. When times get tough, I tend to retreat inwards and shell-up, and while times aren’t exactly tough at the moment, my turtle senses apparently have been activated.

I can’t write about work. The nature of my work prevents me from sharing much about it, other than to say I really do enjoy it and have talked to some amazing new parents on the phone. I’ve done a lot of reassuring and a lot of educating, and I hope my words will help these parents find confidence in their own abilities to care for their newborns.

Other than work, my life is kind of lacking at the moment. My spare time is spent sleeping and spending a little time with my family while downing Pepsi Max to keep me awake. Aaron is still unemployed, so I also help him job hunt. When I have time to sit down, I’m zoning out to Netflix or knitting or just reading along with conversations on Twitter and Facebook, unable to find anything to add to the conversation.

How did I become so boring? I don’t even find myself interesting at the moment, so why in the world would I expect you to find me so?

I don’t think I’m depressed – I think I’m just short on time and energy. And I know that lack of time and energy affects my friendships, both online and in person. I’ve yet to figure out how to have it all and do it all, and admire those I know that make it look effortless. I can’t even handle working full-time and remembering to feed the kids – how do others manage to work, keep a clean house, take care of kids AND nurture all of the relationships around them?

Blogging is all about making connections, and I’ve started to feel like my limited availablity has strained some of those connections. Honestly, how hard is it to write a damn e-mail to say hi to people now and then? Surely I can do that much, right? I’ll be at BlogHer, though, and I’m determined to renew some of those connections and friendships, even if it means taking the big step of admitting I’m a lousy friend and apologizing for all of the internet silence of late.

Actually, I’m hoping that while at BlogHer I’ll find the real Christina again. I think she got left behind at BlogHer in Chicago last year, and I’m hoping that she’s resourceful enough to find her way to New York City by early August. I’m not expecting to find her at any private parties or swag suites – after all, this blog’s market value has fallen faster than California real estate prices – but I do expect to find her talking and listening and hugging old friends and greeting new ones and learning from others and sharing what little she knows to benefit others and running with women who helped motivate her to be better and simply enjoying the people she’s surrounded by. (Including way more than I have time to even link here.)

If you see the real me at BlogHer, be sure to say hi to her. I guarantee she’ll be more interesting than this poor excuse for a post. And then remind her that despite all of the challenges of work and family, her ability to craft a good story and be a friend to those around her is desperately needed at home.



Graduation Day

Last week Cordy ended her final year as a preschooler. She had been through two years of half-day special needs preschool, followed by a year of full-day pre-K, and to celebrate a graduation was held for all of the kids in her class.

They all wore baseball caps that said “Class of 2010” and had gold tassels on the top as they entered the classroom and sat down in front of all the parents. The kids gave us a presentation of their talent show performance of “Eight Days a Week” and then the teachers spoke about the progress each child has made over the past year.

 (next lesson: teach Cordy to sit like a lady when wearing a skort)

Each child then received a diploma.

We ended with a tear-inducing slideshow followed by cake. Because cake makes everyone happy.

Next up for Cordy is a mainstream summer camp at a local Montessori school, followed by kindergarten back at her current school. After the massive meltdown she had on the last day of school, I’ll admit I’m a little nervous about how summer camp will go, but I’m trying to remain positive and remember that the Montessori method was designed for kids like her, and she’ll likely have a few rough days at first but will then settle into the routine of a new place.

Cordy’s also on a new medication now. Our two week period of no-meds wasn’t the worst time of our lives, but it certainly wasn’t the best, either. Despite the side-effects of the previous medication, I found myself wanting to call up the doctors and promise to never complain about irritability from the medication again if it meant she’d sit still for a few minutes to read a book or do a math workbook or do anything other than demanding to watch TV every minute of the day. The flapping came back. Her lack of focus was painful to deal with. And I forgot just how out-of-it she could be sometimes.

But after speaking with the doctors, we’re trying a new medication that they feel will reproduce the positive effects of the study medication without the irritability. It’s the safest option of the medications available, with the fewest and least harmful side-effects.

The downside is that if it works, the study will be over in a couple of weeks and we’ll have to find some way to pay for the $180/month medication.

Yep, still no health insurance here. No private insurance will cover autism, remember?

(But OF COURSE we don’t need health care reform in this country. Ahem.)

One option could be to use the old generic of the drug – when it was originally used as a blood pressure medication – which is thankfully inexpensive. But it isn’t an extended release like the newly patented version, so we’d have to give her multiple pills a day (not too big of a problem) and hope it doesn’t create a roller-coaster-like effect throughout the day (could be a big problem) as a result.

So far, we’re seeing modest improvements in Cordy already. She’s back to reading books and doing math problems. She’s drawing again. And while they do still fight like sisters – as any kids would do – she is actually letting Mira play with her sometimes. Another week or so should be enough time to evaluate her response.

I’m being optimistic, but I think that Cordy is going to have an amazing summer of growth. She earned her graduation and I’m confident she’ll continue to impress everyone she meets.

Please, fate, don’t let me have to eat those words.



Mira’s Perfect PINK Party

So Saturday was the great PINK party. Many guests showed up wearing pink for Mira, and Mira happily wore the PINK dress she picked out at The Children’s Place.

All of the decorations were PINK, and most of the presents were PINK, too. The cake? Oh yeah, it was PINK:

The cake was made by Krazy Kakes, a local Columbus small business. Even the inside of the cake was PINK with strawberry filling. Gorgeous, no? It tasted amazing, too! We also had a second PINK cake from Whole Foods for Cordy, which meant that nearly everyone got two slices of cake and was on a sugar high the remainder of the day.

I should have taken more photos. But I was too busy keeping things running. Hopefully someone else snapped a few for me.

And Mira celebrated her birthday in true diva fashion. You may remember that my children have a fondness for Lady Gaga. Well, for Mira it’s more of an obsession now. At preschool they occasionally turn on the radio for the kids, and when a Gaga song comes on, Mira screams, “Da Wadee Gaga!!”

So in true Gaga form, Mira’s preschool teachers made her a birthday crown unlike any other birthday crown ever made in that school.

Lady Gaga? I think you have a new three year old friend.

She wore it with true pride, even out to Bob Evans for dinner. And like Lady Gaga, she appreciated that everyone was looking at her.

What little monster have we created?



Three

Today I no longer have a toddler.
Today Miranda will start her day as a preschooler, or as she calls it, a “big girl.”
Unlike Cordy, Mira has been planning her third birthday for over a month. She immediately told me she wanted a PINK (her emphasis, not mine) party, with PINK balloons and PINK cake and PINK decorations. (Fun fact: Mira likes pink.) She created most of the guest list. And she’s been very good at making sure we don’t forget that her birthday is in May and she’ll be three.

All this birthday talk has spurred her to think about her future as a big girl, too. She spins stories of how she will someday go to work, and she’ll drive a PINK car to get there. She can’t even say PINK yet – due to her speech apraxia, it sounds more like HINK. However, I can understand her so much better than I could even half a year ago, thanks to all of the hard work she’s put in trying to be understood.

This younger daughter of ours is more than just a little girl – she’s a force of nature. Her impish spirit is obvious to everyone she meets, and her direct and sometimes forceful personality ensures she gets her way. She’s just now three years old, but she has already mastered manipulation, charm, and knowing just how to bat her eyes to get one more cookie. Where Cordy falters socially, Mira shines.

Today my little girl is three, and I’m mourning the baby that’s being traded in for this child. She longs to explore her world and make her place in it, going further from my reach each day, and I’m not ready to let her go yet.

But when bedtime is near, and she climbs onto my lap to cuddle for “jus too moh minuwtes” she nestles her head against my shoulder and reminds me that, “I noh ah baybee, I ah big girl. Buh I m stiw mahmee’s baybee.”

Happy birthday, Mira. You are a big girl, but you will always be my baby.

(There was no way I could leave this photo out.)


When Is The Right Time?

I don’t know if you’ve seen the new TV series Parenthood, but if not I highly recommend checking it out. I was originally interested in it simply because I was curious how they would portray, well, parenthood. It’s true, marketers have me pegged – put the word parent or mommy or mom in a title, and you can guarantee I’ll check it out.

The show is funny. Very funny. And sometimes painfully funny – in that way where you laugh but inside you cringe a little because you’ve been in that exact same situation and remember how humiliating it was. But the show also takes itself seriously in portraying the lives of an extended family, all very different people in very different situations. These people could be us, and in watching the show you quickly find yourself drawn to identifying with one person who is most like you, yet recognize so many of the struggles faced by the other characters, too.

In watching the show, the one thing I never realized was that Parenthood would also be tackling the subject of autism. In early episodes, one couple discovers that their son is on the spectrum, and their world is turned upside down in so many ways. When I quickly realized where they were going with that plot topic in the first episode, I wasn’t sure how I felt about it. Would they make the topic of autism light and fluffy? Would they make it worse than it really is? Would the boy be little more than a caracature of a child with autism, or would they really make it realistic?

Truth is, they have so far done a brilliant job of walking the line to bring awareness to the condition. I’ve cried several big, fat tears while watching this show because these parents could be us. Hell, their names are Adam and Kristina – how much closer to Aaron and Christina could you get? I watched them struggle with even accepting there might be something wrong with their son, and remembered my own struggles with the same topic. They frantically searched for a “cure” just like I did. They’ve tried to protect Max from those who don’t understand him, the same way we’ve tried to protect Cordy.

Of course it’s a TV show, and there will never be enough time in each episode to present a full, clear picture of autism, but I’ve been impressed with how real it is thus far.

This week’s episode really affected me, though. In it, the family teams up for the Walk for Autism, with Max as family cheerleader, determined to win the trophy. At one point, he shouts, “Let’s help those kids with autism!” and everyone in the room is suddenly aware that Max doesn’t know yet that “those kids with autism” includes him.

I don’t think we’ve ever told Cordy that she has autism. Granted, she’s much younger than the character of Max (who is nine, I think), but it’s never been something we’ve talked about. She’s attended special-needs preschool for three years now where she’s had weekly speech and motor skills therapy. For three quarters of a year she’s participated in a research study for kids with autism, requiring several cognitive and developmental skills tests. She’s taken pills purely at our request, never really knowing why we asked her to take them other than “they help you stay healthy,” just like her vitamins.

But despite saying nothing to her directly about it, there have been clues. She knows she won’t ever wait at a bus stop for her bus like other kids. She’s aware that some kids in her class can’t talk and have meltdowns that sometimes require them to be restrained. For herself, she knows she has “the flappers” who live in her arms and sometimes make her flap. She knows she has irrational sensory fears. And there are times I’m sure I can see right into her mind through her eyes, watching as she fights internal battles with herself over her confusion on social cues and her reactions to the world around her.

The TV show psychologist told Adam and Kristina that they will know when the right time is to tell Max about his autism. I hope the same is true for our family. She’s probably too young to even understand it at this point, and I don’t want to further burden her with the knowledge that she is most definitely not like other kids. She already has moments where she seems so distant and sad, as if she’s pondering how to solve world hunger, wars, and the environment all at once. Why add more weight to such small shoulders?

I don’t want Cordy to feel different, but at the same time I want her to know it’s OK to be different. I sometimes feel like a hypocrite – I’ll stand proud and defend her differences, reminding anyone who would shun her that autism isn’t a choice, but I also want her to improve and hope she’ll be able to fit in better with her peers. It is possible to defend her diffences and yet want her to change in the same breath?

No one said parenting would be easy. It’s no surprise why I watch any show with the word parent in it and participate in the parent blogging community – it’s impossible to do this without looking to others for support and a little validation that I’m not the only one who feels like I’m parenting blindfolded without a net sometimes.

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