"Worst Child" and Continuing School Problems

We have been so lucky thus far in Cordy’s education. When she was diagnosed with autism, we were lucky to have her placed with a special needs preschool teacher who completely understood Cordy, what she needed, and how to bring this child out of her own mind to be with the rest of us. I’d argue that she possibly knew what Cordy needed more than we did.

When it was time to move on, that teacher knew where to send her and called in favors to have Cordy placed at a school on the other side of town where she knew the special needs pre-K teacher there would be the right fit. That teacher also continued nurturing Cordy, and prepared her for the road ahead. She then went to the special needs teacher for the elementary age kids, who quickly realized Cordy’s potential and got her on track for mainstreaming.

Our daughter has been surrounded by school professionals who have clicked with her and recognized her talents, and we’ve continued to be lucky. Last year was her first year of being fully mainstreamed, and first grade was an absolute success for her. I’ve witnessed other parents online fretting and stressed over IEP meetings and school issues, but we generally had no issues and sailed through each IEP meeting, all of us in agreement on what was needed and how well she was progressing.

Second grade, however, seems to be the wrench thrown into the well-oiled machinery.

Cordy had her first ever PEAK experience last week. For a reminder, PEAK is the school’s bad behavior process. It stands for Positive Efforts for Adjustment and Knowledge. Getting sent to PEAK involves missing at least a recess for isolated behavior issues, where the child sits in the PEAK room with a teacher overseeing them, and has to fill out a form addressing what they did wrong and how they will correct it for next time.

Last week she grabbed a boy around the neck while they were playing zombies at recess. She was protecting the other kids from the zombie, and the playing got a little too rough. Fair enough, I thought, she needs to know there are limits and even though she completely freaked out about it, I considered it an OK consequence. I was more excited that she was actually playing with other kids, and not spending her recess wandering around by herself.

Then last week she had another incident. This time she was laying on the ground when it was time to line up at the end of recess. When the principal came over and told her to stand up, she stuck her tongue out at her and ended up in PEAK again for it. Cordy couldn’t really explain why she did it, other than saying she wasn’t herself at that moment and an alien must have taken control of her. I was upset, but considered it a fairly minor offense and wondered if she was just having a hard day and couldn’t express it.

This Tuesday came word of another incident. This time, while standing in line for the pencil sharpener, she poked the girl in front of her in the elbow with her pencil. Well, stabbed really, since it broke the skin. Her second grade teacher was standing right there and couldn’t say if it was an accident or not. Cordy didn’t really know how it happened, either – she admitted she wished the other kids would hurry up so she could sharpen her pencil, but also said she didn’t mean to hurt the other girl. Cordy received PEAK again, only this time she lost her long recess.

I don’t believe she was trying to hurt the other girl. From what I can tell, she was next in line behind this girl, was very focused on sharpening her pencil and possibly distracted by other noise in the class, and then decided it was her turn to sharpen her pencil, missing that there was still an arm belonging to another person in her way. Not seeing the other people around her is very believable to me. Yes, she was careless and deserved a consequence for hurting someone else, but I genuinely don’t believe there was malicious intent in what she did.

That afternoon when I picked the kids up from school, Cordy’s special needs teacher talked with me about the incident and we discussed what could possibly be causing all of these problems to happen all at once. Cordy has never been in trouble at school before now. Her special needs teacher said that she thought Cordy wasn’t getting along well with her second grade teacher and the class style.

(This is going to get long, so can we all agree that special needs teacher will now be SNT moving forward, and second grade teacher will be referred to as T2 to save me some typing?)

Cordy doesn’t like that T2 has a loud voice and says that voice scares her sometimes when she thinks that T2 is yelling. SNT also says that class of kids is more rowdy and loud than the average class. I suggested that maybe we should have Cordy speak with the guidance counselor about ways to help her deal with her anxiety.

As we were leaving Tuesday, we saw T2 further down the hall getting ready to leave. I’m sure T2 saw us as well, but quickly turned and went out the door. “Mommy, can I go say goodbye to T2 and give her a hug?” Cordy asked. I agreed and she ran ahead of me and out the door.

This is my own opinion of what happened, but I’d swear T2 walked faster when she heard Cordy calling out to her. But Cordy did catch up and give her a hug. I was getting closer up the sidewalk, but T2 gently disengaged from Cordy, said something about needing to get home to her own kid, and walked off before I got there. Wouldn’t you want to say something to a parent of a child who is struggling in your class?

When I picked the kids up from school yesterday, SNT asked me to come inside the building. Oh, no. She told me Cordy had PEAK again. This time she called T2 a witch. I don’t want to make excuses for my child, but in this case I think T2 misunderstood. Cordy told me she thought T2 laughed like a witch she heard on TV. In our house, witches are totally cool – especially near Halloween – so I don’t think she was trying to be insulting. I can admit she may not have said it in a way that made that clear, though.

However, Cordy later told me that she was never told why she was sent to PEAK, nor did T2 say anything to her when she called her a witch. No form was filled out like previous times so that we could have a report of what happened, and no one talked to Cordy about what she did wrong or how she should behave in the future. Her teacher just dropped her off in the PEAK classroom on the way out to recess with no explanation. She sat out her recess confused as to what she had done.

My frustration level boiled over at that point, and I started crying in front of the SNT. The ugly cry. I turned away to make sure my two daughters who were playing on the other side of the room didn’t see, but I could no longer hold back the emotion of the last week. For the first time in a long, long time, I am scared for my daughter.

I’m starting to worry this is affecting Cordy’s self-esteem. She likes to please, is very hard on herself when she makes mistakes and may be internalizing that she’s a bad kid. She’s required to sign her PEAK forms, and on the second one she wrote “worst child” under her name. On a class worksheet, she wrote “I am horid.” (misspelled, but points for creative word choice) at the bottom.

“worst child”

But after talking with SNT yesterday, I think I’m starting to see the issue. SNT describes the class as loud and T2 has a loud voice and sometimes yells over the kids talking. Cordy also has her desk right next to the door, the coat rack and the pencil sharpener: a recipe for sensory disaster. She’s assaulted all day with noise from kids talking, a loud teacher who makes her anxious, and lots of background noise from the hallway, the pencil sharpener and the coat rack. It’s no wonder she’s having trouble keeping it all together. Hell, I’d have trouble dealing with all of that, too.

Cordy is also extremely bored in class, meaning the background sensory input is even more distracting to her because her mind isn’t focused on learning. She needs more challenging instruction and a more peaceful learning experience. A smart kid who is stuck in a boring situation most of the day is being set up for trouble. (Again, shades of my own childhood.)

And while I’m sure T2 is a great teacher and I would never judge her total abilities on her interactions with one child, I think she’s a bad match for Cordy. My gut feeling is that she doesn’t make an effort to accommodate Cordy’s needs, and at this point has written her off. Sent to PEAK for calling her a witch without even asking what she meant or trying to tell Cordy why some might think that’s not a nice thing to call someone? That isn’t helping the child at all.

Also, despite all of these things happening in the last week, there’s been no effort made from T2 to reach out to Aaron and I about it. We’re left learning about it through the SNT, who isn’t present in the room when it happens and is then stuck in the middle. Send a note home, give us a call, send an email…something to let us know you’re concerned about our daughter and want our input on how to make it a better experience.

Add in the devastating news that Cordy’s SNT, who has been a strong advocate for her for over two years now and the one person in the school she feels the safest with, has just been given a promotion and will be leaving the school at the end of this month, and I’m now in full on panic mode over what will happen to our sensitive older child. Who will be there to help her through this, and will the next person understand her as well?

I’ve cried for two days now at the fear that this entire year may be a complete loss for Cordy, even more worried that this could change how she views school permanently and affect her entire future. There’s no explanation for this behavior other than something is happening in the classroom. Her diet is the same, her home life hasn’t changed, and the only change we’ve witnessed at home is more anxiety that seems to be related to school.

But we are lucky again, at least for the moment. Her SNT is still with us through the end of the month, and we’re getting her IEP meeting in place immediately. I’m also asking for Cordy to be transferred to the other second grade teacher’s classroom and the SNT thinks this could be a good idea. She sees him only for reading and science at the moment, but Cordy tells me he has a “quiet, steady voice” and she thinks he teaches more “interesting” things. She would then have him as her primary teacher and only see T2 for limited subjects. (They team-teach.)

When I first asked Cordy what she thought about moving to his class, she gave her standard answer of not wanting anything to change. Even if she’s in a situation she doesn’t like, any change is viewed as worse than the status quo. (So common with autism.) But this morning, she came downstairs and immediately announced that she would be OK with changing classes and that she thinks she would have a better experience in his class. We were stunned that she would be so open to such a big change that quickly.

I’m still not sure what the final resolution of this will be, but I have a new-found admiration for those parents who have to navigate these murky waters on a more regular basis. It’s time for me to read up more on the IEP process and start writing out detailed lists of what Cordy needs in case they no longer continue to match what others think she needs. It’s been so easy until now, and I have a feeling it’ll continue to get harder as she gets older. I’ve failed at keeping myself prepared on how to handle these things, and plan to remedy that so we can be strong advocates for our daughter’s education.

But right now? I’m scared out of my mind.



HalloWeekends at Cedar Point: A Screaming Good Time

This may have been the coldest weekend so far this fall. So what did we do? Go spend all of Sunday out in the cold, of course!

When we went to Cedar Point back in August, we saw the signs for their HalloWeekends events and thought it would be fun to come back out and see the park all set up for Halloween. Halloween is one of my family’s favorite holidays: costumes, candy, spooky stuff – what’s not to love?

Don’t we all wish for one of these now and then?

The weather, though, did not cooperate with our plans. It was cold and cloudy, and we decided quickly to ditch plans for letting the kids wear their Halloween costumes to Cedar Point. Layers of warm clothing were the costume of the day.

 This guy needed a jacket.

Despite the cold, HalloWeekends at Cedar Point was a lot of fun. The entire park was decorated in skeletons, pumpkins and monsters. There were Halloween-themed events all day long, as well as scary haunted houses for the older kids and grown ups later in the day. And of course most of the usual rides were open, too.

This time we took our sister-in-law and a friend of hers with us so that we could trade off kid-duty from time to time, giving Aaron and I the first chance to ride a roller coaster together in YEARS. (Seriously, super big thanks to you both!)

There are plenty of kid-friendly HalloWeekends events that are fun and not too scary. They have the Magical House on Boo Hill, which is a young kid version of a haunted house. It was mostly spooky decor with some slightly scary special effects, like a floating table, a kid-size organ that played by itself, and a skeleton who appeared and disappeared in a closet.

At the end of the house, the kids were all given a small bag of treats as a reward. I also liked that they had someone at the front door, keeping out older kids and teens who weren’t accompanying a smaller child.

Cordy and Mira also loved the hay maze and ran through it several times.

The HalloWeekends monsters came out a few times during the day to interact with kids and dance.

Cordy even followed along to learn the Thriller dance.

There was a costume contest for the kids, but we didn’t bring costumes due to the cold so we didn’t enter. At 4pm, the HalloWeekends parade came through the midway, filled with bands, dance teams, monsters, floats and of course the Peanuts gang. Even though there were monsters and zombies, the kids weren’t scared seeing them marching in a parade.

But of course the main attraction is still the rides, and Cedar Point has some of the best. Aaron and I were thrilled to ride the Raptor, a suspended coaster that has several loops in it. And thanks to shorter lines we were able to experience the 195 foot drop of the Magnum XL twice. (Back car, naturally. It’s a must for that roller coaster.)

The kids had plenty of fun in Camp Snoopy, too:

Cordy opted out of any roller coasters, even the Cedar Creek Mine Ride. Mira, still not quite tall enough for most of the roller coasters, was limited to the Iron Dragon (a suspended coaster with no loops) for her thrill experience. And she went on it three times. It would have been four, but a late day rain shower stopped her fourth attempt. Hopefully she’ll grow another inch by next year to gain access to several other roller coasters.

Aaron and I also went through one of the more scary haunted houses. It was appropriately spooky and we jumped several times as we wound our way through all of the tight spaces.

Despite the cold, we had a fantastic time. HalloWeekends still has all of the fun of any day at Cedar Point, with the addition of some great Halloween themed events and attractions. The decorations are amazing, the shows and haunted houses are fun, and I paused for a moment to pay tribute to the recently closed Disaster Transport in the Rides Graveyard.

You will be missed…

HalloWeekends at Cedar Point is open Friday-Sunday through October 28.

Full disclosure: We received complimentary passes to attend Cedar Point. Parking, travel, food, and an amount of money I’d rather not discuss to win our kids two Pokemon toys in the games area were covered entirely by us.



Fighting Inner Demons and Zombies

We’re several weeks into the new school year now, and for the most part it’s gone well. We had bus issues at the beginning, but since they readjusted the pick-up time in the morning, we haven’t had any problems with the kids arriving late to school. We’re still choosing to pick them up from school each day because no solution could be found to shorten the afternoon bus ride to under an hour and a half.

I had originally worried Mira might be challenging for her kindergarten teacher. She’s not only smart, but she’s clever and knows how to manipulate a situation to her favor. But so far everything has been great. She’s already gathered her own gang of friends, she’s progressing quickly with learning to read, and she claims she’s never had to move her name once on the behavior board. (If they get in trouble, they have to move their name to a different spot – the lower you go, the more privileges you lose.)

Cordy’s year has been a little more of a struggle. When the bus was running late and they were helping her deal with the anxiety related to that, she quickly picked up on the concept that if she had anxiety in class, she was taken to the special needs room where she got to swing and relax. So, like most kids would do with this knowledge, she’d fake anxiety to get out of boring class time and go relax.

I realized what she was doing very quickly and collaborated with her teachers to remove this as a reward. Now if she has to go to the special needs class, she loses computer time. With that change, her behavior immediately improved and she remained in class all day for the past few weeks. Other than her complaints that they’re only learning “kindergarten-level” math (can you tell she’s bored?), she’s enjoying school.

This week has been harder, though. I don’t know if it’s the weather change or the full moon earlier in the week, but she took a full step backwards in behavior. Unfocused, hyper, irritable – it’s been a challenging few days for her.

Then yesterday I received a call from the special needs teacher. A group of kids were playing “zombies” at school, and the play got a little rough. Cordy, trying to protect other kids from the zombies, grabbed a boy around the neck and left small scratches on his neck. There’s no way she meant to hurt him – the teacher said all of the kids were playing rough and that’s when they were told to stop.

But because Cordy had hurt another kid, school policy required her to lose her second recess and spend it in their behavior correction class. It’s a classroom with a behavior specialist in the room at all times, who helps kids work through better choices for their actions. Some kids spend most of their day in that room, others (like Cordy) only are there for a recess and hopefully never return.

For a perfectionist like Cordy, the world came to an end. That is where the Bad Kids go, which means she must be a bad kid. Unable to separate out the difference between a bad action and a bad person, she immediately became upset. Her teacher said she was crying in class and couldn’t focus on her schoolwork, so she was taken to the special needs room to calm down.

She told her special needs teacher that she should be “thrown away” or that we should “kill” her because she’s such a bad person. They were shocked at her reaction and didn’t know what to do. My heart ached to hear it, but I wasn’t shocked. Cordy often overreacts like this when she makes a mistake, and we have to walk a very thin line in discussing the problem with her while also protecting her ultra-fragile self-esteem.

No matter how often we tell her that everyone makes mistakes, and we learn from our mistakes so we don’t make them again, she still believes that a mistake means she’s a failure as a human being. Her inner voice – or inner demons, really – convince her that each mistake is THE biggest mistake she could possibly make, and she will never be able to right the wrongs or redeem herself.

Cordy did eventually calm down after her teacher repeated much of the script we use when she overreacts, and she served her sentence of missing second recess. But she was still upset when she came home.

I was fighting back tears the rest of the day. Cordy is our gentle soul who doesn’t understand why anyone would hurt someone on purpose. She internalizes every mistake as a personal failure, with even the smallest error on her part worthy of the most extreme punishment in her mind. It hurts to see her struggle and tear herself down so much. She is a smart, happy, and kind child who likes to please others, but no matter how much I try to show her that and praise her, she only sees her flaws.

Also, at the moment she’s still mostly unaware of what her classmates think of her, but I’m sure that she’ll find out eventually. How long will it be until someone calls her “weird” or a “freak” and it sinks in? How will we handle that? I love this kid with all of my heart, but I know I can’t protect her from the rest of the world forever.

No one prepares you for this part of parenting. What To Expect When Your Kid Navigates The Social World of Elementary School and The Happiest Elementary School Kid On The Block aren’t handed out at baby showers when we’re anxiously preparing to become parents. Add in special needs and autism, and it’s three times as difficult. My heart aches.

(And yes, I’m already starting to worry what’s ahead when puberty sets in and kids get really mean.)



LEGO Castle Adventure at COSI (Giveaway!)

I’m not sure why, but the last weekend of September is probably the busiest weekend of the entire year. No one in Columbus coordinated their calendars and as a result there were a billion things to do. (That may not be an accurate count of events, but isn’t too far off.)

We had so many activities going on this weekend that we were forced to pick only a few and turn down all other offers. I’m still exhausted as I look around my messy house and wonder when will I have an empty weekend to get any cleaning done?

But one exciting event of the weekend was visiting COSI for the opening of their new LEGO Castle Adventure exhibit. LEGOs? Castles? Science? It was like some of our favorite things came together in one big package for us.

The exhibit features the science of castle building, allowing older kids to practice building virtual castle walls to withstand a catapult, while also having lots of real LEGOs to build and play with. Professionally built LEGO castles and medieval scenes were on display, as well as a giant LEGO dragon and her baby.

There was also a throne room perfect for photos, and a smaller castle to climb with a slide on the other side.

Did I mention Mira was being a ham that day?

They even had a jousting arena, where kids could face off against targets or each other.

Bins of dress up clothing ensured that most of the kids in the exhibit were looking the part as a knight, king or queen. Mira especially liked dressing up and pretending to be a knight, using her pink unicorn shield to protect me from the dragon.

Cordy preferred to stay in the LEGO building area, creating a fortress to hide a small box she built. She said the box was filled with treasures. Very small treasures.

The LEGO Castle Adventure exhibit was a lot of fun, but after half an hour they were ready to see more at COSI. It’s a huge building, filled with different areas to explore, so we spent the next few hours wandering the exhibits.

We shot water at King Neptune in Ocean.

Mira tried to make a phone call in a 1962 phone booth in Progress.

We looked at tasty works of art, all created from Jelly Belly jelly beans.

And they hammed it up in front of a green screen in the WOSU studio.

It’s easy to spend most of a day at COSI, and we didn’t even have time to check out a movie in their Extreme Screen theater.

Giveaway!

Want to check out the LEGO Castle Adventure and COSI for yourself? I have a four pack of general admission passes, along with four Extreme Screen passes, to give to one lucky reader!

Obviously this is more convenient for readers local to the area, but if you’re planning a family trip to Columbus at any point this year (hey, why not?), these passes are good through the end of the year.

To enter the giveaway, just leave a comment below telling me what part of COSI you would most like to explore with your kids. That’s it, easy-peasy. One entry per person. I’ll accept entries until end of the day on Monday, October 8, then select one winner at random. Please make sure I have a way to contact you if you’re the winner.

Good luck!

Full disclosure: the kids and I received a free one-day admission to COSI and COSI provided the giveaway passes. All opinions are my own.



Health Insurance Hoop Jumping

I was thrilled to find out earlier this week that a health insurance claim that had been pending for nearly a year was finally being processed.

Yes, eleven months and a week to process one claim. Crazy, right?

The claim was for a test I had done last October after my doctor was concerned with some odd symptoms I had recently experienced. She recommended an abdominal ultrasound to rule out ovarian cancer. (Spoiler: everything was normal, other than a slightly out-of-position ovary. Yay!) Trusting my doctor, of course I had the test done.

At that time we had only recently obtained health insurance. Since we were uninsured before that, we had a one year waiting period for any “pre-existing conditions” and when we signed up for insurance had to provide the names of any health provider we had visited in the last year so they could obtain our medical records to determine what pre-existing conditions we might have.

Since I had never experienced anything like this before, I wasn’t too worried. Our insurance sent a letter shortly after the test stating they needed me to sign another permission slip to obtain my records before they could process the claim. I authorized all of it again and considered it done.

Then I began getting letters from the outpatient center at the hospital where I had the test done, asking me to follow up with my insurance because the claim still hadn’t been settled. When I checked with my insurance, they told me they were waiting on my records from a grocery store clinic where I was treated for strep throat once. I again authorized them to send another request for my records, and also pointed out that these grocery store clinics couldn’t diagnose anything that would be relevant to the test I had done.

This entire scenario repeated two more times. Maybe three. I lost count.

Over the summer, I then received a bill from the hospital, telling me they had received three denials from insurance due to missing information and so would start the billing clock against me. I owed $2,097 for an ultrasound, and please pay within 30 days.

A flurry of calls to the insurance company started again, asking why this still hasn’t been processed. They told me they were still waiting on my records from my strep throat visit before they could declare that I wasn’t trying to get coverage for a pre-existing condition. I was so upset at this point. What did I have to hide? I signed away all of my rights so the insurance company could dig up any medical info on me that they wanted to – how was it my fault that the clinic wasn’t complying with their request?

I was angry and scared at this point. Angry that the processing of a claim could be held up due to a strep throat visit and angry that I even had to deal with a pre-existing conditions clause when we pay a large premium every month just to then have a $1000 deductible per person. (Well, it was $1000. It’s $2500 now.) And I was scared that the insurance company would continue to hold up the process and refuse to pay, which would leave us in the position of accepting the entire bill or possibly going into collections and hurting our credit score while we continued to wait.

The customer service reps at the insurance company were very understanding, I will admit. They agreed it was ridiculous and wanted to help however they could. Finally, last month one rep looked through the history of this claim and said, “You know what? I’m going to send this on to claims processing again, and I’ll put a note on it pointing out that the grocery clinic can only handle minor illnesses anyway. Let’s see if we can get them to forget this and get it processed.”

It took nearly a month, but then I looked at my online account and saw it had FINALLY been processed.

It’s not a perfect happy ending, of course. Insurance declared that the “allowable” part of the bill was only $964.62 and so that became the new total. Of that total, they paid $111.78 and left me with a bill for $852.84, the remainder of my deductible from that year. We’ll still have to set up payments with the hospital for that amount, but at least it isn’t as bad as $2,097.

What really drives me crazy is the new bill after the insurance processed it. Because I had insurance, the hospital is accepting $964.62 as the total bill for the procedure. But had I not been insured, I would have been responsible for more than twice that amount.

So those unable to get insurance are not only afraid of ever getting sick or hurt because they have no safety net in place to help cover those bills, but when they do need care they’re hit with a bill that is much larger than what the provider will get from someone with insurance.

I’m so glad that my tests were normal. I can’t imagine how much worse this would be had I been sick and needed treatment, all while trying to fight for coverage. And that’s WITH insurance. My experience is completely how the old system works – the Affordable Care Act (aka “Obamacare”) provisions that relate to this story have yet to go into effect, although I can’t wait until they do. Our daughters are already seeing the benefits from it, and I’m looking forward to those same benefits and protections.

I know there are good people who do good work at health insurance companies. But I still believe that a health insurance company cannot provide effective medical coverage of their members when they have profits to make each year and shareholders to please. It’s an unpopular belief to many, but I don’t believe health insurance should be a for-profit industry.

While I’d prefer universal health care, I’m willing to accept the idea of private, universally non-profit health insurance companies, where any profits beyond operating costs are rolled back into health education and research, programs providing new ways to encourage preventative care, decreased premiums and incentives for proper maintenance of health conditions. (This would be the nurse in me speaking.)

I know health care is a hot button topic during this election year, but I believe it’s far more than a talking point. Whether you’re a fan of the Affordable Care Act or not, I think we can all agree the old system is not effective and needs reform. I’m not 100% happy with the new system being rolled out, but I’m ready to give it a chance over dealing with the current one.

Related Posts Plugin for WordPress, Blogger...