No Really, Wear Sunscreen

It was just last month that I was reminding all of you to check your skin. Back in April I had a small mole removed, and when the pathology results came back, it was revealed that it was abnormal, but not cancer. I’ve had several moles removed that came back like that, so there was no surprise there.

But when they called with the results of this one, they said they’d like to take more of the edges just to be safe. That was a first for me, but this was a new dermatologist, so I figured she just did things differently. The man on the phone told me that this time it would be stitched closed. I’ve seen others who have had moles entirely removed, and they usually had one or two stitches in place – no big deal.

I went back to the dermatologist’s office yesterday, ready for a semi-repeat of the last visit. I suited up in my oh-so-stylish paper gown.

Rocking the Paper GownRocking the paper gown!

The nurse sat down with me and started to explain the results again, only her explanation seemed more…heavy. That abnormal mole was a special kind of abnormal mole. There are three types of abnormal: mild, moderate, and severe. Mild and moderate are often just watched with no further action needed. But severe, well, that’s abnormal cells that are as close to melanoma as you can get without actually being melanoma.

It’s not skin cancer, and might not ever turn into skin cancer, but there’s a much higher chance that it could. And since there was a very large mole (I’ve named it Bertha) that this smaller mole was now touching after hovering near it like a moon before (I’ve now named the smaller mole the Death Star), they needed to take both out, as well as a decent border around all of it.

So this wasn’t going to be a tiny spot with one or two stitches then? No, not at all. The nurse explained that there was going to be a scar, and due to the position on my lower-mid-back, it’ll likely be an ugly scar. It’s impossible to keep the scar small when that part of the body is constantly being twisted, stretched and pulled.

The nurse left, and I sat in the room alone, my mind racing with this new information. Suddenly I wasn’t feeling so “no big deal” about this anymore. This was serious, and this was seriously going to be a minor surgery. That abnormal mole was setting off the cancer spidey-sense for my doctor, so I possibly dodged a big bullet by getting it removed now. What scared me even more is that she had looked at that one back in the fall and wasn’t concerned, and didn’t seem too concerned when she biopsied it back in April after I insisted that it looked like it had changed a little more in six months.

I understand why they didn’t tell me all of this on the phone when they set up the appointment. I would have been a nervous wreck for the next three weeks.

When the doctor came in, she went over everything again, telling me much of what the nurse had explained. Football-shaped incision to remove all of the skin down to the fat underneath, with a double layer of stitches – the inner layer would dissolve, the outer layer would be removed in two weeks. The doctor demonstrated how she’d pull the surrounding skin together when stitching it up, and I joked that it was a good thing I lost so much weight in the past few years so she’d have plenty of loose skin. She also made a point to tell me that this would likely be an ugly scar. I replied that I didn’t have any plans of being a back model anytime soon, and I’m far past any years of wearing a bikini, so it was fine. Humor – easy to use as a shield when dealing with hard news.

The whole procedure lasted about 45 minutes. I expected one or two shots of lidocaine to numb the area, but it was more like 10-12. The bee-sting feeling slowly faded to nothing, and they were then ready to begin. I laid on my stomach, wondering if I needed to not breathe too deeply so I didn’t affect the depth or direction her scalpel was moving.

(Warning: This next paragraph is graphic – if you’re easily squeamish, skip to the paragraph after it.)

I felt the nurse pressing against my back several times, and when she sat the gauze on the tray I realized she was dabbing away all of the blood coming from the area. Then the doctor pulled out a little tool that made several beeping noises. I wasn’t sure what it was at first, until the smell hit my nose. She was cauterizing blood vessels – the smell of burning flesh is hard to mistake with anything else. There was a lot of blood.

(OK, the worst is over, squeamish people continue reading.)

As she was finishing the stitches – and that part took awhile, too – I realized this was likely going to hurt when the numbing wore off , and started asking about restrictions while it heals.

Clean it daily, apply petroleum jelly to keep it moist and keep it bandaged. No ibuprofen or alcohol for a few days because of a risk of bleeding too much. If it starts to bleed, apply pressure and call the doctor or go to the ER if pressure doesn’t stop the bleeding.

Limited movement and no lifting for the first couple of days, too, then slowly allowing more movement, but cutting back quickly if it starts to bleed. No stretching or strength training exercises for several weeks – yoga is right out. Running/walking is OK in a week or so as long as I don’t twist too much in my torso when I run.

I realized my plans for exercising more have been temporarily put on hold because of this.

The new section of skin that was cut out will be sent to pathology again to confirm that there were no abnormal cells around the borders, and to take a closer look at any remaining abnormal cells in the sample. If the borders are clean, then all is well and I can go back to regular skin check appointments. If not…well, then I’m guessing we do this whole process again and take more out.

I have a large pressure dressing on my back that I’ll be changing for the first time today, and finally getting the first look at the stitches. As I got dressed in the doctor’s office, the pressure dressing was solid white. Two hours later I had already done too much, as I could see the blood in the gauze. It hurts, and I forgot just how much we use our backs for practically ANY movement.

Still…there’s a bright side to this story, and it’s an important one. It wasn’t cancer. OK, I guess I can’t say that for certain until the pathology report on the new skin cells comes back, but we’re pretty sure I’m good. Regular dermatologist skin checks are important for detecting changes early and removing anything suspicious before it could become cancer.

And wear your sunscreen. All the time. Especially if you’re a fair-skinned Irish-blood like me. My skin might not be trying to screw with me had I been better at applying my sunscreen and didn’t try to be tan as a kid.

Irish Girl SunbathingMy childhood summers, summed up in one photo.

The sun worship is long over in this house. I’ll admit to being more than a little scared of my own skin now. Will it decide to turn on me? Will I catch it in time? Could I have prevented this by taking better care of it when I was younger?

And if ever I need a reminder to wear my sunscreen daily and put it on the kids as well, I need only look at my back and the ugly scar that will be forming there.



An Update On My Healthy Living Goals

It’s been nearly two and a half months since I gave up soda. Since that time, I’ve had small drinks of Diet Coke twice – and both times now, I’ve found it doesn’t taste good at all. When I’m feeling a craving for caffeine, I opt for tea or iced coffee instead, and I’m completely satisfied with the changes.

The money we’ve saved by not buying soda has helped offset the costs of buying more organic foods. We want to avoid GMOs and pesticides as much as possible, but the costs for that add up quickly. Now that summer is here, more farmer’s markets are opening and I need to start planning my visits to them during the week so we can pick up more fresh, local produce. (Why must so many be on Saturday mornings when I don’t want to be awake?) We have some fantastic local farmers who I’d rather give our money to for freshly picked food as much as possible.

I still struggle with sugar. I’ve wanted to keep cutting back on sugar, but it’s so, so hard. Cutting out salt is easier than sugar, especially in the evenings when I always seem to crave a sugary treat. I’m making better choices when I can – real fruit versus added-sugar treats – but I admit that this is a constant struggle for me.

My fitness goals have been painfully ignored due to a lack of planning on my part. I start every day with the intent to work out, but plans often get in the way. My last attempt at running proved to me that the muscles in my legs may have memory, but my heart and lungs quickly forget everything I taught them.

Last Friday, I dusted off a strength training DVD I used to use regularly, with the intent of motivating myself to work out more by seeing how well I can still do it. That didn’t go so well. My legs were shaking throughout, and there were times I couldn’t finish the number of repetitions asked of me. I did make it to the end, but it wasn’t pretty at all.

The next day? Oh, I hurt. The day after that? Even more.

It did motivate me, though. Feeling those muscles again made me realize that I need to get moving more and carve out time in my schedule to exercise.

My weight is still holding steady about five pounds over my lowest weight. I’m aiming to erase that five pound gain entirely before the end of summer. I’m running in the Color Palooza 5K in a week and a half (let’s be honest, I’ll be walk-running that one), and I might sign up for more 5K races just to give myself forced goals. I hear there’s a 5K coming up where they spray you with water and dump water on you at several points – for someone who sweats as much as I do, that sounds lovely.

What are your healthy living goals right now? How’s it going?



Premature Excitement (aka: Dumb Mom Moment)

This morning there was a noticeable excitement in the air. After a week of having the kids bored at home most days while I worked, we were all looking forward to this week’s plans.

Lunches were packed this morning, towels and bathing suits were labeled with their names and packed up, sunscreen was in easy reach. Cordy and Mira were ready for summer day camp, and I was ready to have my peaceful work space back.

I kissed them both goodbye as Aaron hurried them out the door this morning to the car. It’s been raining all morning, and they ran to the car to avoid getting too wet. I felt a little bad that their first day of camp would be indoors, at least for the morning, and made a mental note to pick them up early today so they could ease into their first day of camp.

I took a deep breath, relaxing in front of the computer in total quiet, with only the dog for company. Looking through my email, I started to plan for the day ahead.

And then my cell phone rang. I figured Aaron had just dropped them off and wanted to tell me how it went. “Hello?”

“Hi. You might want to re-check the dates of summer camp this year.”

“Wait, what?”

“Summer camp doesn’t begin until next week.”

“WHAT?”

What?

As Aaron confirmed that there was no one there and he was coming back with the kids before going to work, I pulled up the website to look at the dates again.

June 17. Argh.

I was certain that it started today. For the last few years, camp has always started one week after school ended. I was so certain that I had marked it on my calendar with this date. I’d made a doctor appointment knowing that I wouldn’t need someone to watch the kids during that time. How did I get it so wrong?

So summer camp doesn’t begin until next week, which means I need to re-figure my plans for this week. I guess all of my excitement at having our summer routine back made me bump up the dates in my head.

On the bright side, there won’t be any hurrying around the house next Monday to prepare all of their supplies for summer camp. Everything is already neatly packed in bags, ready to go. And I won’t need to make them lunch today – they can eat the packed meal intended for camp.

I feel like an idiot for mixing up the dates. The kids are a little disappointed, but not too upset. I’m probably more disappointed than they are.

At this point, I’ll be triple-checking the back-to-school dates before adding it to the calendar.

Mistakes happen, right? Please tell me I’m not the only one who got the day wrong for an event for her kids.



Another Day, Another Evaluation

Yesterday I spent the morning in a psychologist’s office. No, not for me, although I think we can all agree I’d probably benefit from a visit. This was for Cordy. Her county service provider had told us last month that she was due for a re-evaluation by the time she turns nine in order to still qualify for county funding. Since things like social skills classes and other behavioral services are rarely covered in full by insurance, this funding is tremendously helpful.

She was last evaluated when she was four years old, which was when she received the PDD-NOS diagnosis. Yesterday we saw the same psychologist that we met with four years ago. I wondered if she’d remember the stubborn, curly-headed four year old from years ago, or if she’d even recognize her after she had grown and changed so much. I also worried that there was a chance that Cordy would try to fool the tests and appear perfectly typical, losing her diagnosis and possibly any future assistance.

It didn’t help my fears that she woke up that morning perfectly cheery and agreeable. She’s been an irritable crankypants for the past few weeks, easy to anger, wanting to be left alone as much as possible, but on the day when I was hoping a professional would see these behaviors, she woke up as Miss Sunshine, happy to chat, polite as can be.

Cordy has also become accustomed to testing. In this school year, she’s been evaluated twice for gifted education, and she also had a re-evaluation for the school district. At this point she likes the testing, and she’s also becoming self-aware of being different and wants to know more about it.

As we drove to the office, Cordy asked me, “Will this be like the other tests I’ve had this year?”

“Similar,” I replied, “You’ll probably answer a lot of questions from her, and you’ll probably be asked to solve some puzzles.”

“Oh good! I like puzzles. Will she tell me why I have autism and think different from others?”

Oh dear. “Well, I don’t think she can tell you why you have autism. But I’ll bet she’ll tell you that if you do think differently from others, it’s not a bad thing at all. We’re all different, and being different makes us all interesting, right? And she can probably help you understand things that don’t make sense to you, but I doubt she can do all of that today.”

That seemed to be enough for her, and she went back to reading her book. At the office, the doctor did indeed remember Cordy, and asked me to explain what’s changed since she last saw her. I didn’t think we had time for all of the changes, so I summarized as best I could. Cordy was already distracted by everything in her office, and started spinning in her office chair, then found a small ball and tried to bounce it off of the walls.

After we talked a bit, I was sent to the waiting room with a parent questionnaire to fill out while she evaluated Cordy. It’s so hard to describe all of your child in a series of questions that are answered with Often, Sometimes, and Never. I again worried how Cordy was doing in the office. When she met with the school psychologist earlier this year, he said he didn’t see any of the behaviors her teachers had reported and said that if he had only seen her for that one meeting and didn’t have any other data, he would never have suspected she was on the autism spectrum. Of course he also said Cordy asked him repeatedly how she was doing and would ask if she got certain questions “right” – being perfect was her goal, and she was trying to shape her responses to what she thought he wanted her to say.

I also had that awful voice in the back of my head saying What if she really isn’t on the autism spectrum and you’re just a bad parent? Despite having her diagnosis confirmed for us more than once, I still struggle with that absurd criticism that we’re really forcing a label onto nothing more than bad parenting, since she’s so high functioning. If we had only forced her to do more for herself and behave properly, blah blah blah. It’s a horrible idea that doesn’t deserve any of my energy, but it still pops into my head in times like these.

It felt like I was in that waiting room for hours, but after about 45 minutes Cordy came out to meet me. The psychologist explained that she’ll review everything and would write up her results and send them out to us in a few weeks. My impatience got the better of me, though, and I asked if she could at least give me initial impressions – does my daughter still have PDD-NOS or was there anything else she saw?

The doctor said it’s without a doubt that Cordy is on the autism spectrum. She’s using the new DSM 5 guidelines, so it would be called Autism Spectrum Disorder now, but she said it’s likely under the old DSM 4 she’d fit better under the Asperger’s diagnosis at this point. She wants to get Cordy enrolled in a social skills group in the fall, and she wants to set up a meeting with us and her behaviorist as soon as possible.

Apparently when she asked, “What do you do if there’s a fire?” Cordy responded, “Call 911.” And then she suggested after you call 911 that you try to put out the fire. (facepalm) I’d like to explain that we’ve told her several times that the first thing you do in a fire is get out of the building, and the fire department even came to their school and taught them all fire safety, but the message didn’t stick with her. So that’s something to work on with the behaviorist.

I’m looking forward to reading the entire report, and I’m glad Cordy has been such a good sport through all of this testing. She’s an amazing kid, super-smart, and with such a unique view of the world. She’s got plenty of things she’s not good at, but don’t we all? If she can conquer some of her fears and better learn to live with other people around her (which…I get it. Some days I don’t like people very much, either.), there’ll be no stopping her.



People Are Different and That’s OK

I’ve written before how Mira sometimes struggles with having an older sister with autism. Now that summer break is here, Cordy is her most frequent companion, at least until summer camp begins. She wants Cordy to play with her all the time, while Cordy would be completely happy to be left alone with a stack of books and the computer all day long. I’ve been playing referee between the two of them, trying to find a middle-ground of convincing Cordy to play with her sister a little, while also demanding that Mira give her sister some space when she needs time to herself.

On Monday I took Cordy to her weekly occupational therapy appointment. Mira had to come with us, since Aaron was not home from work yet. She gets terribly bored sitting in the waiting room, even with the iPad, several kid magazines and TV in the room. Since the weather has been nicer lately, she asked if we could go to the park near the office while we waited. We’ve done this a couple of times, and it’s definitely an easier way to wait out the appointment with Mira. Burning off some of her energy was preferable to the eventual trouble she’d get into in the waiting room, so I agreed and we went to the park.

Swinging at the parkMira loves the swings at this park, and has been working hard at learning to keep herself in motion without being pushed. I usually give her a few pushes to get her started, then sit on the swing next to her and provide encouragement.

This time, a few minutes after we were settled on the swings, another girl about Mira’s size wandered over to the swings, clutching a doll in a blanket. She looked at the empty swing on the other side of Mira, then turned to look across the playground and yelled out “Ma-ma! Sfing!”

Her mom, a disembodied voice on the other side of the playground equipment, yelled back, “I’m not pushing you!”

Mira, ever the chatty child, immediately called out to the girl, telling her that swinging was so much fun and she’s been learning how to keep herself going by kicking her legs out and pulling them back and that it really wasn’t hard at all. The girl nervously eyed the swing and clutched her doll tight, looking back and forth between her doll and the swing.

She then carefully set her doll down on the ground and sat in the swing, looking around as if she didn’t know how to get it started. The girl said something that sounded like “I like to swing sometimes,” but I had trouble understanding what she said.

Mira didn’t lose a beat and started telling the girl her name and then instructions on how to properly sit on a swing and where to hold the chains. (All while continuing to swing, of course.) Mira also volunteered me as a swing pusher, but having just heard the girl’s mom state she wouldn’t push her, I worried about getting involved. What if the girl’s mom was trying to make her learn on her own? I suggested she let the other girl try on her own first.

The little girl lifted her feet, but only swayed gently back and forth. She tried to give herself a little push-off with her feet, but didn’t get any momentum.

The little girl said a few sentences back to Mira, some not entirely directed to Mira but just said to the open air, and it was then I really noticed that she had a lot of trouble with clear speech. She also was unsteady as she moved, more so than many kids her age, and seemed to struggle with getting the strength to push herself to a starting swing.

I wondered if Mira would notice her new friend was different? So far, Mira was still caught up in her monologue about how to swing. But then she noticed the little girl wasn’t going anywhere. “Do you need a push?” she asked the girl. The little girl nodded, her long hair falling over her shoulders.

“Mommy, I need to stop,” she told me, as she tried to stop swinging without losing her flip-flops. She slowed down a little, then got impatient and popped out of the swing, stumbling a little from the unexpected momentum of stepping out of a moving swing.

Mira spun around to look at the girl, determined look on her face as she sized up the child in the swing, and then flashed a big smile at her and said, “OK, I’ll push you. Make sure you’re holding on!”

And then she pushed the little girl on the swing, instructing her the entire time when she needed to kick out her legs and when she needed to pull back. The girl tried to comply but wasn’t really coordinated enough. That didn’t stop Mira from yelling out encouragement, just like I had done with her two weeks prior. “Kick out! OK, now pull your legs back! Good! Kick out faster now!”

They both struggled to get momentum for her swing, and while I could see the girl was working very hard to stay balanced in the swing and follow Mira’s instructions, she was also having a fantastic time. Mira was all smiles as she pushed this stranger.

Once the girl was high enough, Mira jumped back into her swing, begging me to give her a quick push so they could swing together. Her new friend slowed down quickly, and Mira again asked me to push the girl. This time I did give her a few pushes, hoping no one would get upset with me for touching someone else’s child.

A few minutes later, the other girl slowed down again. She got out of the swing and picked up her doll, cradling it as she looked back and forth between Mira and the large playground structure next to the swings. “C’mon, swing some more,” Mira said to her as she continued swinging.

The little girl looked down at the ground and then stammered, “Play with me? There?” She pointed to the twisty slide.

Mira stopped her swing without hesitation. “Sure! Can you climb the stairs?” And off they ran to climb up the fort and slide down the slide. Mira, the kid who never wants to leave the swings, was happy to abandon them when this sweet girl asked her.

For the next ten minutes, Mira and her new friend played together. When the girl dropped her doll as she tried to climb out of a tunnel, Mira quickly came to the rescue and retrieved the doll for her. They both went down the slide several times and laughed at how it made their hair stick out.

Soon it was time to go, and I told Mira we had to go get Cordy from her appointment. Mira said goodbye to the other girl and gave her a big hug, reminding her to keep practicing on the swings. The girl looked so sad to be losing her friend, but then brightened when Mira hugged her.

As we went back to the office complex, Mira said, “I’m sad I had to leave my new friend. She was fun. I don’t know her name, but she’s still my friend.”

“I know you’re sad to leave her,” I replied, “And it was very nice of you to help her swing and teach her what you know. I’m proud of you.”

Mira thought about that for a moment, then took a deep breath and gave her “The More You Know” speech about the topic. (I swear she does this whenever she senses a lesson to be learned. Anyone who has spent time around her will totally know what I’m talking about.)  “Well, you helped me learn to swing. And it’s good to help other people who can’t do things you can do, right? Like Cordy can’t put toothpaste on her toothbrush, so I help her. And that’s OK, cause sometimes we need help, even if we look big enough to do something.”

“You’re totally right, sweetie.”

She wasn’t done yet. “And my friend talked kinda funny, too, but I used to talk funny when I was younger, right mama? You said people couldn’t tell what I was saying and I had to learn to talk right? I didn’t know everything she was sayin’ but then I thought that maybe she’s still learning to talk right, too! And that’s OK.”

(Yes, Mira likes to sum things up with “And that’s OK.” She could sum up just about any difference between people with “And that’s OK.” I probably taught that to her.)

At that moment I thought my heart would burst out of my chest with love and pride. The little girl she now called her friend was different, but Mira didn’t let that stop her from playing with the girl, and helping her when she needed it, so they’d both have a good time. She was kind and patient and helpful – I couldn’t possibly ask for more from my wise six year old.

Mira really has benefited from having an older sister with autism, even if she doesn’t realize it yet. It’s possible she’d be equally as sweet without a special needs sibling, but I think she has a unique insight into differences because of Cordy. I’m certain she helps Cordy every day by being constant social skills practice for her.

Now it’s clear to me that she has the ability to help others, too. That little girl at the playground had a friend to play with: a friend who helped her swing without judgement, encouraged her successes and never once asked why she talked funny. And that little girl helped Mira, too, giving her someone (besides me) to play with and making her very happy. They had so much fun together, like any two kids could.

Mira now hopes that little girl will be at the park next week. I do, too. And that’s OK.

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