(Continued from part 1 and part 2)
I’d like to say everything was sunshine and rainbows after that first pill, but that’s not the way it happened. I continued taking the pills as instructed, although I quickly found there were some side effects I didn’t like. My muscles tensed up sometimes. Occasionally my heart pounded hard and my head felt like it was in a vice. I wasn’t so sure the clear thoughts were worth the physical trade-offs. But it was easier to fall asleep without all of that noise in my head.
At my next check-up, I told everything to my doctor. First, she was amazed that I could sleep while taking the medication, saying many aren’t able to sleep and she often has to prescribe a sleeping pill as well. For the other symptoms, we agreed to try cutting the dose in half to see if it helped. She also suggested trying a different medication, but due to health insurance not covering any of these drugs, I needed to stick to the cheapest option.
Cutting the dose in half did help, and after a year and a half most of the physical symptoms have vanished. What I like the most about this medication is that it’s short-acting, so I only take it when I need it. This goes a long way in helping me feel like I’m not chained for life to a drug. If I know I’m going to need focus for a task, I take it. If it’s the weekend and we’ve got nothing planned, I skip it. My doctor encouraged me to take vacations from the medication, too, so that I don’t build up a tolerance and need a higher dose later. So far it seems to be working.
Even though the first time I took the medication I experienced complete silence in my head, it hasn’t remained that way. I still have to struggle for focus every single day. Some days are worse than others, but give my brain a chance to spin off in some random direction and it’ll quickly jump on it. The medication just makes my efforts for focus a little easier, and it provides a temporary defense so I can build up greater mental discipline against the waves of sensory onslaught that threaten to drown me on a daily basis.
At the end of last year, with my doctor’s guidance, I tried to stand alone without any pharmaceutical help. It had been over a year and I thought maybe I was ready. I wasn’t ready. By the end of a week I was a disorganized mess.
The hardest part of all of this has been the mixed reactions I get when I do tell people I have ADD. Some have been genuinely supportive and wonderful. Others have nodded and listened, but I could tell they didn’t quite believe me.
And some have been outright mean, stating that there’s nothing wrong with me and I’m just looking for an easy way to cope with a mind and life like any other. These people don’t believe in attention-deficit disorder, especially not for adults. I’m just lazy, weak in mind and discipline, and either I don’t have enough to do in life to sit around and think I have ADD, or I’m too busy and would be fine if I just cut out all of this “online” stuff and stuck to work and mothering.
(As you might guess, some of these people also don’t believe much in autism and think Cordy just needs more discipline.)
I can function now. I can carry a thought from the beginning to the end without losing it halfway through. I can do my job without struggling to push past random thoughts to retrieve the knowledge I need. I can focus on a conversation with a friend. It’s awesome.
I’m also still me, just more anchored in the moment than I was before. I can still recall obscure facts rapidly, I can still think several steps ahead of what I’m currently working on, and I have yet to be told that my personality has changed in any way other than being happier with my life.
This is all a journey, and I’m continuing to find my way through it. My focus still isn’t perfect. I may not need the medication in the future, or I may try a different medication when we have health insurance again. I don’t know how it will all play out. But I’m thrilled with the progress of the past year and a half, and I’m so thankful to feel like I’m in control of my mind again.
I’ve learned that mental disorders and illnesses are simply conditions and not something to be ashamed of. Seeking out help isn’t weakness, it’s taking care of yourself, just as you would diabetes or heart disease or an infection.
It’s good to be comfortable in my own head again.
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